If you continue to use this site we will assume that you are happy with it. But I keep hearing the words from my daughter, a nurse in Cornwall, “Believe me, I’ve seen it, you don’t want Covid!”. Clinical trials showed that people who'd already contracted coronavirus had more vaccine side effects than people who hadn't had COVID-19. This is because the vaccine has not yet had enough time to provide protection. COVID-19 vaccines are safe, and getting vaccinated will help protect you against developing severe COVID-19 disease and dying from COVID-19. This is because your immune system is instructing your body to react in certain ways: it increases blood flow so more immune cells can circulate, and it raises your body temperature in order to kill the virus. “No” Feels like a cold? The coronavirus vaccines are here, and while some people can't wait to get vaccinated, others are concerned about side effects such as sore arms, fevers and nausea. Free Range of Leaflets: Covid-19 and ME/CFS! COVID-19. By now, we do know about a possible list of side-effects of the COVID-19 vaccine. This was after I sent them an email with that template email that @MEAssociation shared. Looks as though my immune system, whose Sat-Nav is usually on the blink, has met up with the vaccine. The (Oxford/AstraZeneca) jab was virtually painless – given by a local GP. After vaccination, it usually takes a few weeks for the body to build immunity against SARS-CoV-2, the virus that causes COVID-19. “I asked if it would be possible to have the Covid-19 vaccine within my home, as I was shielding and because my illness had kept me housebound and single for many years and not well enough to drive. I had to fight for it taking two days of email exchange, but it was worth it!”, “Very positive news for me re: priority vaccination. Saturday in Stroud on a freezing cold afternoon…. With regards to the vaccine, I sent my GP all the information that you wrote in your JCVI letter (this was before you posted your template but the same basic info). All seems to be going well. No immediate side effects – apart from feeling a bit more sleepy than usual in the evening. My age group is group 5 . however, this reaction is extremely rare. There are no reports so far of any serious adverse effects. These symptoms are actually a good sign that your body is building immunity, and they will usually pass in a few days (if they do not, call your doctor), the CDC … Most people have had to travel to have a vaccination and this could also account for an increase in symptoms especially if they have been housebound by ME/CFS during the pandemic and are not used to the sudden increase in activity. “Thanks so much for all you’re doing for the ME community. Continuing cold symptoms. Although in total the number of comments is around 100 so still relatively small. About 65% of vaccine recipients in Pfizer's and Moderna's trials, and 38% in Johnson & … For a monthly (or annual) subscription you will also receive ME Essential – quite simply the best M.E. I had the longest solid sleep for ages. The Covid Vaccine Priority Letter Template (V3) The 'very common' side effects include: A painful, heavy feeling and tenderness and tenderness in the arm where you had the injection, which tends to … Coronavirus vaccine update: Second shot should cause fewer side effects - Dr Chris THE VACCINE rollout continues at pace and a clear picture of the side effects is emerging. For all the vaccines, the most common side-effects include: Soreness where the vaccine is injected. My GP has confirmed I am in Group 6 for covid vaccination and will be contacting me when it's my turn. You may have some side effects, which are normal signs that your body is building protection. “Tired”? You can even establish your own fundraising event on JustGiving. As shown in the results of clinical trials, more serious or long-lasting side effects are possible. Russell Fleming, Content Manager, ME Association. However, I would like to say thank you to Dr Shepard for doing the letter which I had ready to send in case I had any problems. MEA Template Letter re: Covid Vaccine Priority for people with ME/CFS (Version 3). Some medical professionals have stated that the side effects of alcohol can compound the vaccine's side effects, which may end up causing you a day or two of misery.To manage this, Grossman says, "Good medical advice is to avoid nonsteroidal anti-inflammatory drugs (ibuprofen, naprosyn, etc.) No brain fog or ME fatigue. Took a couple of paracetamol and had a very easy day. fatigue, fever, muscle pain. In people whose bodies haven't experienced the coronavirus, that immune … By strange coincidence I was vaccinated at almost the same time on Saturday afternoon as Neil! Other common side effects include fatigue, headache, and body or muscle aches. Your jab awaits.” Mmm… I’ve debated long and hard over whether to be vaccinated against Covid. We are a national charity working hard to make the UK a better place for people whose lives have been devastated by an often-misunderstood neurological disease. “Yesterday afternoon I was very pleasantly surprised to have a member of my local surgery knock at my door announcing that they had come to give me my Covid 19 jab. “That’s it”, the Doc. Reporting side effects. As the coronavirus vaccine rollout continues around the country, some groups have reported feeling more moderate side effects from the shot. Hnida told CBS Denver that people have vivid dreams when they’re recovering from the novel coronavirus vaccine. Mine took about 56. “I hope other sufferers of M.E will be prioritised locally in my area of Cornwall. Feeling just a bit virally and achy this morning. Severe ME – Vaccinated at home (Cornwall). A full list of common side effects of the Moderna vaccine is available on GOV.UK. CCG & Health Board Template Letter (V1) Covid Vaccine! Estimate 25% down on energy but that’s nothing out of the ordinary for this fluctuating illness. Calls cost the same as other standard landline numbers (starting 01 or 02). Woke up at 3.00am and unable to rest. I have had it confirmed by my GP surgery I’m in group 6 for the #CoronavirusVaccine #pwme #MyalgicEncephalomyelitis Thank you @MEAssociation for the template. We use cookies to ensure that we give you the best experience on our website. We even heard from one person with severe ME/CFS who received the vaccine as a priority in his own home! Less common side effects reported for some COVID-19 vaccines have included severe allergic reactions such as anaphylaxis; Still a bit more viral than usual but otherwise OK. In writing this diary, I need to make it clear that this is my own experience of how the vaccination has affected my moderate (home-bound 95%) ME/CFS. response), and is gearing up to fight the virus. I felt a minor stiffness in both left (stuck) arm & back of neck, but that passed, I now have a minor ache in the upper (stuck) arm. if they experience any unexpected side effects or other health events – such as side effects lasting more than three days. Common and mild or moderate side effects are a good thing: they show us that the vaccine is working. Learn about the benefits of membership and how to join our community. – are being reported. I haven’t heard that explanation for Group 6 before, do you think it’s correct? Most report no negative reactions or have experienced some or all of the short-term vaccine side-effects – soreness at the injection site, muscle aches, fatigue, headache and feeling feverish or flu-like – for a few days. Not enough to completely disable me but I definitely felt off and very dizzy after first getting up in the morning or standing up after exercising. Learn more about vaccines – from how they work and how they’re made to ensuring safety and equitable access – in WHO’s Vaccines Explained series. It may be that you can benefit from having a vaccination delivered at home – although these instances are very rare based on the limited feedback we have received. Vaccines are designed to give you immunity without the dangers of getting the disease. Happy to get the vaccine though.”. Free Leaflet: What you need to know about ME. protection. A poor night’s sleep. If you have a call package for your landline or mobile phone then calls will normally come out of your inclusive minutes. Individuals should alert their local health providers following vaccination National authorities and international bodies, including WHO, are closely monitoring for any unexpected side effects following COVID-19 vaccine use. I got the Pfizer, so may get called back within a month. Information for UK recipients on Moderna COVID-19 vaccine. Common side effects MEA Trustees describe their vaccine experiences, Feedback from people re: ME/CFS priority vaccination. Available every day of the week between these times: 10am - 12noon, 2pm - 4pm and 7pm - 9pm. My own GP surgery was extremely helpful, and I was soon able to book in on Saturday afternoon in Stroud instead. We’re in different parts of the country so not just a local decision. Got down to the SECC/Louisa Jordan hospital about 15 minutes before and started queuing. Sleeve up, ready for the needle. I don’t see what difference this makes?? According to the Centers for Disease Control and Prevention, side effects of the vaccines can include pain, redness and swelling at the injection site, as well as possible fever, headache, tiredness, nausea, chills and muscle pain. So here I am, at the surgery. NB: If you are having side effects from your vaccination, then please rest as much as possible and take paracetamol if you need to use a painkiller. Over half of us old folk were trying to distance, but only a minority of medical staff (and a few ‘stewards’) were bothering to distance properly, though they were masked and hand-gelling regularly. Just feels like a ‘thick’ cold (which a Coronavirus is) that you’d do a bit less, rest and take care. A midnight tryst is usually romantic but instead of a warm embrace I reach for the paracetamol. Just click the image to the left or click here for one-off donations or to establish a regular payment. The whole process went like clockwork from arrival in the surgery car park. GPs should be applying their clinical judgement in this situation and taking your own circumstances into account. Pain at the injection site is the most common side effect of all three coronavirus vaccines authorized in the US. Weighing the benefits and risks. My GP was perfectly happy to add me to Group 6 after I wrote to him.”. “It was a painless procedure, and my first face to face interaction with another human being for 361 days! A few checks – had I had Covid, felt ill (I presumed the answer was no), was I on warfarin or similar – a minor prick, and I was directed to go and sit in the next half of the aisle for 15 minutes ‘in case’. You may get a high temperature or feel hot or shivery 1 or 2 days after having your vaccination. He said he’s seen reports of dreams about space, too. COVID-19 vaccines protect against the SARS-CoV-2 virus only, so it’s still important to keep yourself healthy and well. Side effects usually occur within the first few days of getting a vaccine. So it’s possible a person could be infected with SARS-CoV-2 just before or after vaccination and still get sick with Typical side effects include pain at the injection site, fever, fatigue, headache, muscle pain, chills and diarrhoea. Day 6 & 7 – Thursday and Friday 10-11th February 2021. Information for UK recipients on Oxford/AstraZeneca COVID-19 vaccine. Typical side effects include pain at the injection site, fever, fatigue, headache, muscle pain, chills and diarrhoea. About five days after first shot I started experiencing dizziness. Once in Hall 4, we were directed to join 2 queues on either side of the aisle between empty treatment cubicles. Then sharp headache pain and coughing. According to Dr. Scheraga, the side effects have to do with how the COVID-19 vaccines work. I got my first shot on Jan 28 and my second one on Feb 17th (one week ago). Some good news on my birthday. In adults aged under 50 years where the benefits of protection against COVID-19 are likely to outweigh the risks of the side effect, the AstraZeneca vaccine can be used. These side effects usually go away on their own after a few days. People who have received the first dose of the AstraZeneca vaccine with no major adverse reaction are strongly encouraged to receive the second dose as planned, including if they are aged under 50 years. Please can you advise? Or why not join the ME Association as a member and be part of our growing community? Potential risks are as follows: As with most vaccines, there is a risk that the Covid-19 vaccine will exacerbate symptoms, particularly those which overlap with commonly reported vaccine side-effects, eg. Mary always takes that as a serious sign I am unwell but no, just a tiredness. By morning, in full ‘doze’ mode. ME symptoms a little worse but nothing that a cold wouldn’t cause. “The Covid administrator there told me that he consulted lots of different Drs in the practice. Most of these reactions aren’t serious, and go away quickly. About 50 per cent of people who get the AstraZeneca vaccine will experience a mild side effect. Fingers tightly crossed that this is how it will continue. We are beginning to hear from a number of people who have managed to convince their GP or vaccine centre that ME/CFS qualifies them for priority treatment in Group 6. But none of the approved vaccines contain the live virus that causes COVID-19, which means that COVID-19 vaccines cannot make you sick with COVID-19. Headaches, enlarged glands in my neck, numbness, brain fog have all upped their act. Things have changed in hours. says, “finished”. … A few hours later the Stroud appointment was cancelled by text message due to logistical problems! I just found this site while googling about dizziness after getting the Pfizer Covid vaccine. “I reminded them that M.E was indeed classed as a neurological illness (W.H.O ICD 10 G93.3) and that neurological illnesses had been moved to ‘priority’ status by the chief medical officer. My friend with ME in the Bristol area ( similar age mid-sixties )also had hers yesterday but she is housebound . Really pleased so far. The chances of any of these side effects occurring after vaccination differ according to the specific vaccine. “Today I got put down for Group 6 after I emailed them the ME Association Vaccine Leaflet, with a quote from Dr Charles Shepherd regarding the ‘Green Book’ wording. Possibly good news for ME community? We have been receiving a steady flow of feedback from people with ME/CFS who have had the first vaccine. Upon receiving the vaccine, a person should be requested to stay for 15–30 minutes at the vaccination site so health workers are available in case of any immediate reactions. Even dozed off when watching football on TV. When autocomplete results are available use up and down arrows to review and enter to select. Others are, not surprisingly, reporting a temporary exacerbation of some of their ME/CFS symptoms. She had the jab at the same time, so we swop symptoms. Now that will be tough. With millions more Americans getting vaccinated every day, some have complained about symptoms they weren't expecting. Neil, Charles, and Ewan, all have ME/CFS, but the vaccine was delivered based on their age and not because of the underlying health condition: 4-30pm, The letter said, “Be there. Since the first mass vaccination programme started in early December 2020, hundreds of millions of vaccine doses have been administered. There have been concerns about COVID-19 vaccines making people sick with COVID-19. and Tylenol before getting the vaccine, but … to take them after if they get symptoms. Up at 7.00am and feeling drowsy, as though I have a cold. But no painful or heavy arm. We thought you might like to hear how three of our trustees got on when they had their vaccinations. Energy levels down 50%. However, we don’t yet have any information about possible serious side effects, or how the vaccine might affect people with immune system dysfunction. “My GP surgery is now updating all other registered patients of the surgery who are diagnosed with ME/CFS. “I emailed your information about Covid-19 vaccine priority to my Drs surgery, and I’ve received a reply saying I will be put in Group 6! Mary, my wife, is my ‘control’. Confidence rising that my fears for the vaccine were overdone. This article is part of a series of explainers on vaccine development and distribution. Thought the ME association would be interested to know if some GPs’ are including ME sufferers. vaccinations. We may receive further guidance that changes this, though this is not something we are able to do at this time.” Pretty much what I expected from them!”. Fingers tightly crossed that all is going well. A new study finds some COVID-19 vaccine skin reactions, including a measles-like rash and shingles, are rare, and thankfully brief, side effects. ME Association Registered Charity Number 801279, Image credits: 123RF/SasirinPamai123RF/ UnaiHuici, Check out our latest poll and previous results. Some people have no side effects. With moderate, as opposed to mild or severe ME, I’m really worried. Mainly these come from people who work in the NHS or social care and other frontline services and others with ME/CFS who are in the over 70 age group. Side effects of the Moderna vaccine. Like any vaccine, COVID-19 vaccines can cause side effects, most of which are mild or moderate and go away within a few days on their own. It was also the first vaccination since I got ill with the virus that gave me M.E in the summer of ’86.”. COVID-19 vaccines protect against the SARS-CoV … As ME/CFS is very likely to be exacerbated by the infection, this means that doctors cannot simply state that they are unable to place someone with ME/CFS into Group 6 because the JCVI does not allow them to do so. This is particularly important if you are someone who is severely or very severely affected by ME/CFS and/or housebound and who hasn’t been able to leave home during the pandemic. My vaccine journey started earlier in the week with a paper letter inviting me to a mass vaccination centre some distance away at Bath Race Course or an appointment at a GP hub surgery in Stroud on Sunday morning – I chose the latter. Mild-to-moderate side effects, like a low-grade fever or muscle aches, are normal and not a cause for alarm: they are signs that the body’s immune system is responding to the vaccine, specifically the antigen (a substance that triggers an immune Vaccines are safe, and getting vaccinated will help protect you against COVID-19. I tire very easily. COVID-19 vaccination will help protect you from getting COVID-19. Here’s what late-stage clinical trials have found about side effects for each COVID-19 vaccine authorized for emergency use in the U.S. Pfizer. Oh, and I came away with a lovely little card saying I’ve had a dose of Astra-Zeneca; how thoughtful these GPs are. Long may it do so. I reckon it wouldn’t recognize a protein spike if it met one. I also mentioned that I was reluctant to use a taxi because of the risk of exposure. I am heartbroken!”, “Just got the following from my GP: “We are unfortunately not able to move an individual up to group 6 for chronic fatigue syndrome/ME. Most side effects of the COVID-19 vaccine are mild and should not last longer than a week, such as: a sore arm where the needle went in; feeling tired; a headache; feeling achy; feeling or being sick; You can take painkillers, such as paracetamol, if you need to. Other Rare Side Effects There have also been some extremely rare side effects reported. It means everybody responds differently. Dr Charles Shepherd (Stroud, Gloucestershire). Queued outside for about 10 minutes and spent 5 minutes inside. And, we have heard from a small number that didn’t have to negotiate to get the vaccine. “It’s obviously a lottery for whether your GP has empathy for ME or not, and it’s so upsetting to realise the lack of it at mine when it affects my and my family’s life so much!”, “Further to your update re the Covid vaccine, when I spoke to my GP on this matter they said that they do not have the facility to add people to the lists, that it is done centrally, and not the remit of the GP. It’s a struggle to keep going through the day, so lie down and listen to my audio book, which sends me off to sleep nicely. Woke at midnight with a sore and heavy ‘jabbed’ arm. Left chocolates for the volunteers…. The CDC has just updated its list of Covid vaccine side effects, listing muscle pain, nausea and redness at the injection site. So will take things easy today – as I’ve been advising our members to do…. Hoping things will start to improve soon. All three COVID-19 vaccines authorized for use in the US have caused side effects. If you would like to support our efforts and ensure we are able to inform, support, campaign, and invest in biomedical research, then please donate today. Overall things going well. Dr. Dave Hnida, the medical editor for CBS Denver, recently said he’s heard of a number of side effects related to the COVID-19 vaccine — including dreams of space. continually monitored to detect adverse events. The reply we received from the JCVI directed us to the wording in the ‘Green Book’ which says that GPs should (not can) apply their clinical judgement when it comes to patients who have underlying health conditions that are likely to be exacerbated by Covid infection – see blog published earlier this week. We don’t expect the chief medical officer for England or the JCVI will make a clear ruling about the inclusion of ME/CFS as a neurological condition that warrants priority treatment with the Covid vaccine. I contacted my local GP surgery a week ago to let them know that I was still housebound, and existing on my own and that due to my illness and to shielding I had not seen a soul since Feb 12th, 2020! I find him and this whole page very supportive.”, Joint Committee on Vaccination and Immunisation. “I was told that they would return in 12 weeks’ time to give me the second jab and that this second jab might be a different make of vaccine to the one I was being inoculated with today. Goes to show immune responses can differ. Hear that Charles (Shepherd) who beat me to a jab by 3 minutes last Saturday, had his ‘reaction’ to it within the first 24 hours. If you are (or the person you care for is) severely or very severely affected by ME/CFS then you have a much stronger case for priority vaccination, so please use the proforma letter to contact your GP and make the request. These side effects may affect your ability to do daily activities, but they should go away in a few days. Don't panic, doctors say. Reported side effects of COVID-19 vaccines have mostly been mild to moderate and have lasted no longer thana few days. Lots of staff checking why you were there and directing you on to the next corner/possible diversion of attention. I donned my facemask and gloves and opened a window and left the front door wide open so that a good draught would freshen the air in my cottage. That progressed the length of the (biggest) hall, then we turned into the next row, and came all the way back. Experiencing no side effects doesn’t mean the vaccine is ineffective. Most report no negative reactions or have experienced some or all of the short-term vaccine side-effects – soreness at the injection site, muscle aches, fatigue, headache and feeling feverish or flu-like – for a few days. You may experience some mild side effects after getting vaccinated, which are signs that your body is building So that’s the first good news, the small pin prick hardly registers. While we consider if it is worth raising the issue as a parliamentary question, we think it is still worth sending the proforma letter to your GPs surgery or vaccine centre – if your GP is unable to make a decision. It’s probably wondering what all the fuss is about. “No appointment had been made but this was not a problem at all. Will I have a bad relapse for weeks, months? “Please pass on my thanks to Dr Shepherd. COVID-19 vaccine side effects. Trusted Source, common side effects of a COVID-19 vaccine include: a fever fatigue headaches body aches chills nausea The last two days have seen my ME symptoms worsen. (and they were not high before the jab). Here's what might happen, and … Both the Pfizer/BioNTech and Moderna vaccines use messenger RNA (or mRNA) . The three COVID vaccines currently approved for use in the U.S.—from Moderna, Pfizer, and Johnson & Johnson—are providing some much-needed hope about getting the pandemic under control after a long and difficult year. Afternoon today ( I phoned to check ) about five days after first shot on Jan 28 and second. Even heard from a small number that didn ’ t mean the vaccine is working and your immune system responding. Few days more vaccine side effects include pain at the injection site, fever, fatigue, headache, pain! 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